Wednesday, August 28, 2013

Caribbean Pink Fundraiser Coming Soon!


For those of you who aren't aware, I'm in the process of setting up a service to bring some joy to people who are bedridden or housebound with long term illness. Caribbean Pink will refresh, reorganise & beautify the bedrooms (or other chosen room) of our 'clients' - because looking at the same room day in, day out can get so very depressive!

During the month of September we will be having a fundraiser to help raise the money needed to get Caribbean Pink up and running!

If you could please spread the word that would be wonderful!





In just 3 days time, a custom #CaribbeanPink candle will be revealed by Ancient Light!

The sale of these candles during September will help raise funds to help us bring some joy to the lives of people who are bedridden or housebound with long term illness.

Alongside an exquisite fragrance that has been chosen by Ancient Light for our candles, those who have scent sensitivities but still wish to buy a candle will be able to purchase one of these soy-wax creations without any added scent.

Our aim is to sell 100 candles during the month. That's just a bit over 3 candles per day. Will you help us achieve our target?

Please share, tell your friends and family, & consider starting your Christmas shopping early!


Orders can be made through:

The Caribbean Pink Facebook page
The Ancient Light Facebook page

Or by emailing me.



Tash's Brain Fade Moments: Episode 3

I thought it was about time that I share another #brainfade moment. I have plenty of these moments, but not all of them are easy to explain, or particularly amusing. 

At moments like these I can't help but think that I may be ahead of my time, that is, I truly am turning into a Nanna at only 29 years old. The fact that I will be picking up my mum's granny scooter this weekend, for my own personal use, seems only to confirm this idea.



Tash's Brain Fade Moments: Episode 3


Eating my dinner of calamari and vegetables, I noticed that the oven was on. I wondered which of my housemates were cooking. I decided not to say anything.

After I'd eaten, I joined my housemates in watching an episode of Suits. I noticed that the oven was still on & wondered whether they'd forgotten about it. I decided just to leave it, and not to say anything.

Finally, after couple of hours after I first noticed the humming of the oven's fan, I asked the question. "Mike, do you have your dinner in the oven? Laura?", "No?" 

That's odd, I thought.

Laura opened the oven door to take a look & there, inside, was my 'extra caramelised' potato. 


Oops.

Thursday, August 22, 2013

Under My Skin

Monday is a big day for me. A significant day. A day that will set off a chain of events, and I don't know where it will lead me. I admit, I'm rather nervous about it.

On Monday, at around 3pm, I will have blood taken. That blood will be couriered to Germany and, at a cost to me of about $900, tested for Lyme Disease and select co-infections. 

I don't know if I'll test positive. I'm not even certain if I want to, or not. If I do have Lyme Disease, I feel hopeful that with a year or two of treatment, my health could improve dramatically. I could even achieve my dream of, by the time that I turn 32, being able to both work part time again, and have coffee with a friend without feeling like death afterwards. That would be beyond wonderful. And maybe, just maybe, I'd get the chance to meet someone, to get married and have a child. I'm aware that while I remain as sick as I am, the odds of that happening are slim.

However, there is a catch. 

Treatment for Chronic Lyme Disease is expensive. From what I've heard from others being treated, it can cost up to $15, 000 a year. Money I do not have. And it's harsh on the body. In many cases, a patient treated for Chronic Lyme Disease will get a lot sicker, before they get better. It has been compared to going through chemotherapy, but instead of killing cancer cells, you're killing the Lyme parasites that have taken over your body. Saying that, I'd rather kill them, even if doing so puts me through hell, because the alternative is that they could kill me.

Lyme Disease is a controversial illness. Some doctors don't even seem to want to believe that Chronic Lyme Disease exists. But it does. Many doctors in Australia insist that we don't have Lyme Disease here. But we do. 

If I do have Lyme Disease I probably got it in Europe. That helps, when it comes to getting doctors to believe that you have it. Thankfully I have an amazing Lyme literate doctor, who is also my specialist for ME/CFS. 

Since I was a teenager, I had aches and pains, and needed a bit more sleep than other people seemed to. Those aches and pains got gradually worse over the years, but I was still able to both study full time and work part time, as well as having a social life, going to the gym and attending dance classes. I now know that this could have been a sign of the connective tissue disease that I have been diagnosed with &/or ME/CFS. Things changed in 2007. 

I lived in London 2006-2007, and before returning home, I packed up my backpack and spent three months travelling around Europe. A few weeks into my travels, I got very sick, with what I thought was a chest infection. It lasted for about a month before I started feeling a bit better again, but I got so sick that I took myself to Accident & Emergency in Bruges about 3 weeks in. There, they told me, that if it's a chest infection it looks like it's on it's way out. I never noticed a 'bullseye' rash, associated with Lyme Disease, but around 50% of people affected don't get one. I now believe, that if I do have Lyme Disease, that is when I got it. The 'chest infection' returned a number of times over the next two years, and my health declined dramatically. By 2009, though I was still attending dance classes a couple of times a week, I could not work more than 3-4hours before I became so tired that I could barely function. A year later, I was forced to stop working, studying & exercising altogether.

If I don't have Lyme Disease, the way forward becomes a little more tricky, and the light of hope for effective treatment a little dimmer, but I won't give up. Nor will I base all my hope on getting better. There is light, love purpose and hope to be found today. I will continue to work towards making my dream of Caribbean Pink become a reality, enjoy & appreciate the incredible people that I have the pleasure of having in my life, and focus on the things that I can do, rather than what I cannot.

Whether or not the level of disability that I am experiencing is due to Chronic Lyme Disease, I will have an answer in the next few weeks. Results are often emailed through within a fortnight of the day that the blood is taken & sent off. At the latest, I will find out at my specialist appointment on September 18th. That's 26 days away. Let the countdown begin!



If you are at all interested in finding out more about Chronic Lyme Disease, and the difficulty in getting treatment due to political and economic issues, please watch the documentary Under Our Skin. It is based in the US, but is still relevant for people suffering from Lyme Disease here in Australia.

Monday, August 12, 2013

Childlike Wisdom: Rethinking Fear Based Judgement.



Today I had the pleasure of helping my friend, Ashleigh, with a blog article that she has been working on. She pretty much had all the thoughts and ideas there, but was just struggling with getting the wording and structure right. I love working with the English language and making pieces of writing look and sound beautiful. So, when she asked for my help, I jumped at the chance! Working on this article reminded of all those times, in my 'past life' when I would write sermons; something I haven't thought about for a while!

Below is a copy of the article, itself. This version is slightly different to the one that she posted on her blogsite. It is the version that I came back to her with after I had played with the original draft.

____________________________________


A very wise person once said something along the lines of
 “Unless you have a change of heart and become like a little child, you will not experience heaven”

It seems that in these wise words is an important message. Children have a great deal of wisdom to offer, if we are willing to listen. How are we preventing ourselves from experiencing life to the fullest, ‘heaven on earth’, because we have not had a change of heart, and become more like a child?

Have you ever seen a toddler refuse to play with another child, because they are a different race, are a bit ‘chubby’, or because their parents are tattooed? We are not brought into this world with a genetic component that compels us to judge, segregate or see others as ‘different’. And yet, if any of us, as adults, were to say that we never place judgement on others, in response to superficial characteristics, we would be lying. As adults, we do tend to judge. As we grow up, programming and conditioning from society and those close to us teach us to be wary of people who are different to us. It is quite ironic that, in a world where conformity is diminishing and individuality is becoming the trend, as a society it seems that we are becoming more and more judgmental and superficial. Evolution also plays a part. We are observant creatures, and have learnt to pass judgement in order to stay alive. But there comes a point where it is detrimental, both to individuals and society. What impact will our judgmental view of others have on our humanity?

When we cast judgement on others, the ramifications are deeper than we may realise. Related to our tendency to judge is the penchant of western society to require that there be an explanation, a ‘meaning’, or something to blame, for every situation. If this cannot be done, a sense of tension, anxiety and dis-ease is created. In order to placate this, we pass judgement on others. We project our own feelings and ideologies onto someone else’s experience or reality, assuming an ability to accurately judge the character and/or intentions of another, in order to calm our own tensions. Having done so, there is an initial sense of relief to have ‘figured out’ that which we were questioning.

Have you ever been accused of being something that you’re not? Been judged inaccurately? Perhaps we’re not always as clever as we think. We don’t like being judged, and yet, we continue to do it to others, often without question. It’s a vicious cycle. What if we chose to change? What if we decided that it’s OK to live in the grey, to not have everything figured out? In choosing to let go of the need to feel in control of everything in our world, we open ourselves up to an experience of life that is much more peaceful.

We have all grown up with different morals, values, goals and aspirations. Therefore, it’s easy to look at someone else’s life choices and criticize them because they’re not what we would choose for ourselves. Although it can be a simple ‘knee-jerk’ reaction to pass judgement, it’s very helpful to realise that thoughts are only words; words that can be either helpful or unhelpful. We do not need to believe or act on every thought and opinion that comes into our head.

Due to our increasingly superficial society, passing judgement on the way people look can be almost second nature. Before even speaking to someone, just on their looks alone, we can have their lifestyle, socio-economic status and personality traits mapped out. Not all judgements we pass are negative, as the stereotype goes- people with glasses are deemed more ‘intelligent’ by society. But when it comes to someone for example, who is obese, covered in tattoos and piercings or wears very revealing clothing, what judgements do we pass on them? A toddler does not discriminate when it comes to the clothing or appearance of their playmates; we’re not born with these stereotypes imprinted in our brains, we have learnt them. It is easy to stereotype and pigeonhole people based on what you see on the surface. Again we need to look at the bigger picture. If we’re all judging each other based on what we see on the surface, how does that help us co-exist together and function as a healthy, happy society? Living in a world where we are all judged so harshly, so quickly, makes for society that is rigid, inflexible and full of individuals with low self-worth. 

Then there’s the judgement we place on others of a different race, religion, gender, age or sexuality. Every person is first and foremost a human being. This doesn’t change just because we may feel uncomfortable with someone who is in some way, shape or form ‘different’ to us. We all deserve to be treated as equals.

“I think this is the first time I am meeting most of you. But to me, whether it is an old friend or new friend, there’s not much difference anyway, because I always believe we are the same, we are all human beings. Of course, there may be differences in cultural background, way of life, faith, or the colour of our skin, but we are human beings, consisting of the human body and the human mind. Wherever I meet people, I always have the feeling that I am encountering another human being, just like myself. I find it is much easier to communicate with others on that level. Our differences are only secondary. If we can leave the differences aside, I think we can easily communicate, exchange ideas, and share experiences”- The Dalai Lama.

It is true to say that we all make mistakes, and some people make choices that are grossly inappropriate, self destructive or harmful to others. But it is wise for us to pick our battles wisely if we choose to disagree with someone. Remember, the behaviour itself is merely the tip of the iceberg compared to the motive behind it. It is worth reconsidering any judgement made about something that you haven’t experienced yourself. Truth is, we’re all fighting something, our demons are just different. When it comes to playing detective and deciphering why someone does what they do, or are the way they are, sometimes it’s perfectly OK to just let it be, no questions asked.  When we try to work everything out, and find the ‘answers’ just to settle that dis-ease and tension, there’s a good chance that we’re actually completely wrong. What’s more, we may well find that, rather than resolving our anxiety, searching for an explanation may in fact amplify it, as ‘answers’ are not always easily found.

Being more open-minded, compassionate and caring doesn’t mean you should compromise your morals and integrity for others. A certain amount of ‘judgement’ is necessary in life. It is appropriate to make the judgement that placing your hand on a hot stovetop is not a good idea! The difference comes in the motivation for our judgments. Are we judging out of love, or out of fear?

“There are only two feelings, Love and fear:
There are only two languages, Love and fear:
There are only two activities, Love and fear:
There are only two motives, two procedures,
two frameworks, two results, Love and fear,
Love and fear.”   – Michael Leunig

Out of love for oneself, it is important to know when maintaining a relationship, and keeping someone in our life, is harmful. Likewise, it is a good thing to speak up when someone voices the intention to act in a way that will cause either themselves, or others, harm. But judging those who are different to us because we fear that which we do not understand, we fear discomfort or the possibility of rejection, only leads to a more fractured & hurting community.

Perhaps it is time that we all have a go at embracing our inner child, and letting go of superficial fear based judgement.

“Treat everyone you meet as if they were going to be dead by midnight. Extend to them all the care, kindness and understanding you can muster, and do so with no thought of reward. Your life will never be the same again.” –Og Mandino

“Be the change you wish to see in the world.”
Namaste

Friday, August 2, 2013

Letter to my MP: Response from The Opposition


Recently, I sent a letter to my local MP, and the opposition candidate. It called for a more compassionate & sensible policy, in relation to asylum seekers (see blog posts, Sunday July 21, 2013)

I have not yet received a reply from my MP. However, a couple of days ago, I received a response to my letter from the opposition candidate. 



As you can see, it is a rather disappointing response. 

As luck would have it, this week I also received another letter in the mail from Mr Sukkar:


All going well, I look forward to meeting Mr Sukkar this weekend, and asking him about his views on asylum seeker policy in person.


Post script: 
Sadly, I was not well enough to be able to meet with Mr Sukkar. 

While I have the feeling I may have been wasting my breath, if I did try to talk with him, the hope is that others overhearing may have been prompted to think more about this issue. And who knows, maybe the letter I sent was enough to plant a seed. I hope that others have also sent letters and called his office. 

Have you contacted your local MP or opposition candidate?

Tash's Brain Fade Moments: Episode 2



Today's brain fade moment is a doozy. So much so that I was told not to post it, because it's too weird. However, I decided to post it anyway. 

I dedicate this post to my #spoonie friends, who will understand what it's like when the brain behaves strangely like this! 
Here goes...



I would assume that most, if not all of you, are familiar with the fact that radio and mobile reception tends to cut out when driving through a tunnel. In this particular case, the tunnel in question is the Mullum Mullum tunnel on the Eastlink tollway.

I was in the passenger seat of my friend's car, listening to my friend as she chatted away about 19th century theology, which, in fact, I find quite an interesting topic. We were on the way back from an appointment and so I was, of course, very tired. As we approached the tunnel, I found myself thinking "Oh, we're coming up to the tunnel! I don't want to miss out on what Janet is saying... I should quickly cut in and ask her to please hold that thought until we get out of the tunnel..."